Radboudumc is one of partners in the new European Reference Networks ERN rare endocrine conditions (ENDO-ERN). This Network involves 71 Health care Providers (HCP) from 19 European Member States and is part of the European Health care innovation program for Rare diseases.
Endo-ERN has established eight main thematic groups covering the full spectrum of congenital and acquired conditions. These are: adrenal disorders; disorders of calcium and phosphate homeostasis; disorders of sex development and maturation; genetic disorders of glucose and insulin homeostasis; genetic endocrine tumour syndromes; disorders of growth and genetic obesity syndromes; pituitary disorders; and thyroid disorders.
The ERN builds on the work of several existing European networks, including those established through the European Society of Endocrinology (ESE) and European Society for Paediatric Endocrinology (ESPE), and those developed through COST Actions. Endo-ERN aims to deliver improved diagnostic trajectories, treatment, quality of care and measurable outcome for patients with rare endocrine conditions by facilitating multidisciplinary and cross-border collaboration and education and by listening to the patient.
Radboudumc participates as HCP with 4 nationally approved expert centres:
- Radboud DSD Centre (chair Hedi Claahsen - van der Grinten)
- Radboud Adrenal Centre (chair Henri Timmers)
- Radboud Pituitary Centre (chair Ad Hermus)
- Radboud Thyroid Centre (chair Romana Netea - Maier)
Hedi Claahsen Henri Timmers Ad Hermus Romana Netea
For more information please contact the HCP representative Hedi Claahsen – van der Grinten
Communication toolkit for ERN Members, ERN BoMS, national focal points and Commission Representations you can find here.
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